Quality of Life of Caregivers of Individuals with Parkinson's Disease

Juhee Lee, Sung Hae Kim, Yonji Kim, Yie Lin Kim, Youngho Sohn

Research output: Contribution to journalArticlepeer-review

11 Citations (Scopus)


Purpose This study aimed to construct a structural equation model to predict the quality of life of caregivers of individuals with Parkinson's disease. Design A cross-sectional survey using a structured questionnaire in South Korea. Methods A total of 208 subjects participated in this study from August 31 to November 26, 2015. The questionnaire included caregiving appraisal, social support, educational program needs, and the Parkinson's Disease Questionnaire-Carer. Findings Participants were either spouses (46.2%) or adult children (45.2%) of individuals with Parkinson's disease. The mean score obtained on the caregiver's quality of life was 40.94 ± 25.30. Social support, caregiving appraisal, and educational program needs were the predictors, explaining 67.0% of the variance in caregivers' quality of life. Conclusions Predicting the quality of life is useful for the development of support resources for caregivers of individuals with Parkinson's disease. Further studies exploring the multidimensional aspects of caregivers' quality of life are needed. Clinical Relevance Rehabilitation nurses should identify caregivers at high risk in order to improve their quality of life. Nurses should assess education program needs and caregiving appraisal of caregivers of individuals with Parkinson's disease and develop a customized intervention program.

Original languageEnglish
Pages (from-to)338-348
Number of pages11
JournalRehabilitation Nursing
Issue number6
Publication statusPublished - 2019 Nov 1

Bibliographical note

Funding Information:
The research was supported by the National Research Foundation of Korea (NRF) funded by the Ministry of Science, ICT and Future Planning (NRF-2015R1A1A3 A04001474).

Publisher Copyright:
© 2019 by the Association of Rehabilitation Nurses.

All Science Journal Classification (ASJC) codes

  • Nursing(all)
  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation


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