Abstract
Aim: To understand the daily lived experiences of adult moyamoya disease patients. Methods: This qualitative study involved a purposive sample of 14 adult moyamoya disease patients diagnosed after 19 years or older at one university hospital in Seoul. Interviews conducted with patients included open-ended questions about the experience of living with moyamoya disease. The data were analyzed using Colaizzi's seven-step method, which derives the theme. Results: Participants' experiences were divided into three themes and eight sub-themes. “Having an unexpected disease that suddenly struck my life” refers to confusion and depression due to the diagnosis of the unexpected illness; “being occasionally anxious about the illness” describes patients' uncertainty about the disease and worrying about passing the disease on to their child; and “living with the disease by going through the disease experience” refers to the process of accepting and adapting to the illness. Conclusions: The findings provide a better understanding of the life changes and lived experiences of adult patients with moyamoya disease. Nurses should consider various aspects when providing care to adult moyamoya disease patients.
Original language | English |
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Article number | e12332 |
Journal | Japan Journal of Nursing Science |
Volume | 17 |
Issue number | 3 |
DOIs | |
Publication status | Published - 2020 Jul 1 |
Bibliographical note
Publisher Copyright:© 2020 Japan Academy of Nursing Science
All Science Journal Classification (ASJC) codes
- Research and Theory